Thursday, August 28, 2008
Great 25th Anniversary Trip!
We had a great time in Gulf Shores! The most relaxed we have been in a long long long time! We ate, slept and ate again! I know he gained weight in the last five days! He says his clothes are tighter on him! So glad he is finally gaining again!
We were supposed to go to the doctor tomorrow but they called and put it off until this Wednesday. The doctor he usually sees was not going to be there and we hate having to go over everything with one he has not seen in a while so as long as he is doing ok they said come on Wednesday. We are going to go over some things we have questions about and see about joining a support group with the Leukemia Society. I think we both need this and discussed it in depth while we were in Gulf Shores.
We want to thank everyone at Roebuck COC for all the encouraging cards they have been sending over the last 3 weeks. They are very sweet and encouraging! I will update after our visit on Wednesday.
Thanks to everyone for sticking with us! Hugs and kisses to everyone!
Alyce
Sunday, August 17, 2008
Trip to Eye Doctor
Terry went to the eye doctor on Friday and they told him that he DOES NOT have the ultra-rated GVHD but the mucus that is still building up in his eyes could be still a light case of GVHD. They put him back on the Restasis drops(cyclosporine)for a while. This causes major burning in his eyes for a while until he starts using his Optive drops that helps sooth his eyes. It also blurrs his vision for a period of time. Hopefully this will go away soon, but not anytime soon according to the eye doctor. It could be keeping any leukemia away also. So not really sure what to pray for, but a little GVHD is better than alot. Please pray for complete healing and getting rid of this at least by May 2009 when we will celebrate 2 years from transplant. Just wanted to let you know his progress. We're not supposed to go back to the doctor until August 29th, after we come back from the beach celebrating our
25th wedding anniversary. And please pray for Kristy(an employee of mine)that is still at UAB in ICU and still having difficulties from the wreck she had back on July 28th. Check in with you later! Hugs and kisses!
Alyce
Monday, August 11, 2008
Family News
We lost a loved one this past weekend. Margret Rockhill passed away and her funeral was today. We went to the doctor first this morning but told them we had to be out in time to go to a funeral. We barely made it! It was a wonderful celebration of her life, a VERY sweet lady, Terry's aunt. She is in a much better place!
His hemoglobin was still up, so they took a pint of blood from him to reduce the iron deposits from the transfusions. We are trying a new medicine for his neuropathy pain and numbness. They gave him a testosterone shot and a shot that will help boost his red blood cells. He has to go back to the eye doctor to make sure there is still no GVHD in his eyes and we will start talking about coming off the immune suppression meds again. Pray that it is NOT GVHD, just allergies that are making his eyes so red and irritated. Karen and Rick are visiting Todd this week and Butch and Jackie just got back from the beach. Pete(Sherri's husband)will be on the Wheel of Fortune, I will let you know when to tune in! So much going on! John moved out of our home this past weekend, so pray God watches over him and will keep him safe! Kristina will be going back to Tuscaloosa this weekend to start back to school next week. PLEASE pray for her as she is going to be buried in nursing school books!
I got a phone call from the real estate agent today and we are supposed to close on the house in Tarrant on Thursday. So many people had such a BIG hand in helping us through it! So congrats to all of you and you know who you are! We have met some really good christian people in the BMT unit and I asked the nurse today if she wondered why so many good people end up with these blood cancers. She said she never questions why, that God has a plan for everyone! They have some really GREAT people in the BMT unit!
We love all of you and "Thank you" to everyone for coming so far with us! In May, we will celebrate his 2nd birthday and if God is willing he will be "Cured"!
God Bless!
Alyce
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