Not a Good Week!

Sorry so long to update but I have been under the weather the last few days. Even had to go to the doctor myself and get a shot! You know I'm sick when I say"give me a shot"! I am feeling much better! We did go see the pulmanary doctor Monday and he did not think there was much to worry about except if it got worse. If it was getting worse instead of better then he would worry. He was going to look at his lastest chest x-ray and see if he saw anything we needed to go back and look at but have not heard from him at all! So I take that as not to worry! No news is good news, I hope! He did have to go into the BMT unit on Wednesday and Thursday and get fluids. Wednesday he got 2 liters and they did a skin biopsy from his back, he has a new rash. I have not been getting to close to him so I did not see that rash at all. Thursday he went back in and got 1 more liter of fluids. His blood pressure is staying VERY low due to dehydration they think. Dr. Vaughan told him the blood pressure thing is a puzzling thing to him and is trying to figure out why its doing weird things. He did mention meds could be doing it. But did not take him off anything. He is having trouble swallowing again and has red spots in his mouth so they are making him rinse his mouth out with a bacterial mouth wash and Tuesday he will get his esophogus stretched and while they are in there will do a biopsy of the esophogus to make sure the GVHD has NOT gotten in there! We are getting together with all his siblings and their children tonight and are going to enjoy just being able to be together and celebrate the birth of Jesus and what he means to us! Tomorrow we are going to Nashville to Neil and Lana's house(mansion)to be with all the Thrasher side of the family. We will take one of executive coaches and enjoy riding with our family up there and back! Just thankful to be able to celebrate together and count our MANY blessings! God has been good to us and he will continue to watch over us and keep us safe! We hope all of you are well and may God Bless Everyone of you for staying with us through our journey and continue to pray for our family! Merry Christmas to all! Alyce

Terry Goofed!

Well, I let Terry preview the post before I published it and he lost part of it. So what you see is what he goofed up, but oh well, it's "his Blog". So to continue, we saw Dr. Lopez today instead of Dr. Salzman. He is concerned about his liver counts(BUN#) He was jaundice after his transplant and his eyes were almost gold. That means his liver is not doing what its supposed to. He changed his immune suppression meds to once in the AM and once in the PM(25mg each). He wants to look at his liver counts again in a month to see if it is better. If it is not they will consider doing a liver biopsy(we have heard this from this doctor before) He is worried that because there might still a chance of GVHD in his eyes because they stay so dry and red that there is a chance it is in his liver. They will do another ultrasound on his leg where the blood clot was but did not say when. We will see the pulmonary doctor this Monday and he will hopefully tell us what is going on in his lungs and why he still has a cough. I will update again after that appointment. Please pray that the BUN levels go down and they do not have to biopsy it! We love you and God Bless You for hanging in here with us all this time! Hugs and kisses! Alyce

Doctor Visit Finally!

He has been going and getting his blood drawn every week to make the level of coumadin is where it needs to be, but today we were there from 8:45am to 3 pm waiting on Dr. Lopez. Although they did let us go eat lunch and come back, that was different! He has not seen a doctor since he was sick after the party