Shingles!

Well, another bump in the road on the way to recovery! Our anniversary was Friday and we spent the day in the new boat on Lake Guntersville! It was SOSOSOSO nice! 27 years! Oh, Rick and Karen, Butch and Jackie "Happy Anniversary to you too"!!! They both have alot years on us! We had noticed several little bumps had developed on the side of his head but didn't really pay much attention until yesterday morning. When he woke up I could tell it had spread on the whole side of his head. I called the BMT unit of course and they said to come in and let them look at it. Shingles, is the diagnosis. Alot of post-transplant patients get this and it is very serious! They didn't admit him but gave him some heavy duty antibiotics and pain meds to help make him comfortable. We were afraid it was GVHD, just didn't know what it looked like. I guess out of the two we'd rather it be shingles. We were supposed to go to a Tarrant high school small reunion but was told not a good idea. If he is contagious, it could make others sick. Of course, I googled it and we learned alot about it. Hopefully we have caught it in time for it not to get to bad. Alot of people have this, you just don't know it. Otherwise, he is doing really good. He goes for photopheresis this next week but don't know if they will reduce the immune meds since this is going on, my guess is they will not. They don't usually when there are problems and don't want to make any other problems arise by taking off medicine. I will update after his visit this week, I promise! Watching our preacher on TV and going to listen to the service live on the computer. We love you and send out hugs and kisses to everyone!

Hospital Visit

Well, instead of going to church, we went to the hospital. He has a bacterial infection in his throat. He could hardly swallow early Sunday morning. They gave him fluids and a shot and antibiotics to take and so far they are working. If I can just keep him out of this heat! Not an easy task! Just wanted to update everyone! Sorry, could have been better news. Everyone pray for the Sharon Owens family! She lives two doors down from us and she developed a brain tumor last summer. She fell at the pool and Garrett picked her up to make sure she was ok. They started doing tests and discovered the tumor. She made us home-made bread when Terry was re-cooperating at home and she was such a sweet lady! She passed away yesterday morning, a year from the time the tumor was discovered. Thanks for keeping us in your prayers! Hugs and kisses!

More Great News!

I am so sorry for not updating earlier! I was reminded last night that it had been a while since an update had been done. Thanks Mike and Steve! T went to the doctor for photopheresis this past week and they took him off 25 mg more of the immune meds. So he is only taking 25mg in the AM and 25mg in the PM. Still on other meds but this is the one we want to come totally off of. Got a new photo schedule through December so we know that will be going on until then and possibly a long time after that, even the rest of his life. But rather do that than face other things that could happen! Kristina, Garrett and Harli are adjusting to their new life in North Carolina. Miss them greatly! Will have to make a trip sooner than I thought! T is fishing in his new boat and hopefully will be able to go back to work soon! Just gotta stay out of this heat! His doctor was very pleased with is progress and hope he will continue to grow stronger and GVHD stays away. We are almost at the point where we were before when he got the GVHD and that is when he started the photo process. So hopefully continuing the photo will make a BIG difference. God's grace and your prayers is what taking care of us all! We love you and BIG hugs and kisses to all of you!