GVHD COULD BE STILL HERE!

Terry went to the eye doctor yesterday and did not get the news he wanted to hear! He has been having lots of problems with his eyes. If you look at a picture before leukemia and after leukemia, you can see a difference! Didn't realize this until yesterday! The eye doctor told him that most likely the GVHD is staying at low bay in his eyes still. The lids are scratching his eyes. They are like fine sandpaper inside of them. Doctor Parker says this is most likely because of GVHD although he doesn't see it. Don't know what this means really until we see the doctor when he goes back to the BMT. I've got to call Lidia to see if she has heard from Dr. Parker yet to see if they want to see him. He is not a happy camper! BUT, like I told him it could be worse! May have to live with this the rest of his life! Lots of bone marrow patients do. They just stay on the immune suppression meds. Not much else except steroids which the eye doc gave him to use. Will let you all know as soon as we know what they are or are not going to do. Please pray it goes away! We know his eye sight will never be the same. He had GREAT vision! God Bless You! XOXOXOXOXO

Again too long since last post!

SOSOSOSOSO sorry its been so long since I posted anything! I was reminded that I still need to do this! Thanks Kay! We did go to North Carolina to visit K & G but did not fly! We drove! Long trip but well worth it! Had a great 4 day visit with them and now she is home with us. Garrett had to go out with his company for the week and she decided to come home while he was doing it. We have had a GREAT time with her and Harlie here this week! T went to photopheresis today and they did not take him off his immune suppression. They want him to go to the eye doctor to make sure he does not have the GVHD in them first. He has been feeling pretty good and fishing when he can of course! Not a whole lot to report thank goodness! The holidays will be here before we know it and we will be celebrating another year together. In January it will be 4 years since he was diagnosed with Leukemia. CANNOT believe that! Then in May two things, 1st wedding anniversary for K & G and we will celebrate T's 4th birthday!!!!! He goes back tomorrow for photo and we think since he has been doing this the GVHD will stay away. But there is always the chance it will rare it's ugly head! The rest of his life! We will just cherish the days we have gotten to spend with each other and look to the future! We lost our preacher this past week and he was one of our rocks during T's illness. He went to get his reward that he has been working towards all of his life! He is in heaven now looking down on us and watching over us as one of our angels. Jerry Jenkins will be GREATLY missed!!!! We love you all who are still keeping up with us and send XOXOXOXOXOXOXOXO!!!