Better News!

We went to the BMT unit today and he had his photopheresis(yesterday too with Butch) and they had to give him 4 hours of phosphorus while he did the photopheresis today. For some reason he is losing this particular element it takes to make your blood cells work correctly. They do not know exactly why either. So he will get this when we come in for the photo in 2 weeks. They will most likely remove the temporary port since I will not need it any more! That is the next good news! We will finish up the fluids next week and the antibiotics are done. The virus he had is gone! God is blessing him so much! His liver counts have improved too! His skin color and his eyes have improved, it is a REALLY big difference since he started the photopheresis. Whoever invented that machine is a billionaire! He is also starting another step down from the steriods. Will be SO glad when he is completely off them! He is SOOOOO weak and it makes me worry about him falling. He is doing all the excercises he can to keep himself from getting weaker, almost too much! If you know him, you know he is a stickler about things and staying on them to make them work! Watch out salesmen for SCS! He will be calling you soon! Congrats to Mike and his first baby being born! Don't think I have left out anything, so many things were discussed today! He will have another bone marrow test done in May to make sure there are NO leukemia cells in it. It will be 2 years on May 26th since his transplant! We made it! Thank you Dear Lord! God is good! We love you all and thank you for staying with us through all this! Its a long journey and nobody could prepare you for this! Please pray for T to have patience, he is wanting to "Get Back" fast and thats not going to happen! He needs more patience! Hugs and kisses! Alyce

GVHD Disappearing!

Good Morning! Its a beautiful Saturday! Terry went to the eye doctor on Thursday and got a good report! Dr. Parker told him he did not see GVHD in his eyes any more. There is a residual left in them, but that he did not see any active in his eyes! That is great news! Praise God! He is feeling stronger every day and the excercise he is getting is helping. He and Butch went fishing this week in his boat and caught 5 fish, he was sooooooo happy! They kept them and took them up to the BMT for Lidia. She has been begging for fish from him for 2 years. Butch of course did all the handling of the fish, T had on gloves and a mask. T said she hugged his neck and she never wants to hug his neck, she always hugs me! I don't know if it is because she is around so many sick people or if he acts smart with her she doesn't want to have anything to do with him! Which he has done alot in the past! She calls him Dr. Davidson when he tells her what to do or what he is going to do instead of what he is told. Sometimes it is funny and other times it is NOT! He tells me he feels like he is on the road to recovery and he feels better and better every day. He has been very active lately and that is a good thing! We go to photopheresis this week and Butch will most likely carry him one of the days, T has really enjoyed spending time with his brother! We will see the doctor on Wednesday or Thursday and hopefully will let him come down again on the steriods, that would be nice! Will update then, but before I go Jr. Jenkins passed away Wednesday night and our prayers are with his family. He lived next door to T for a long, long time. We were their neighbors for ten years! He was special to all the people in Tarrant! Please pray for comfort for his family! God Bless You! Hugs and kisses! Alyce

Coming Off Steroids!

Dr. Salzman gave us the good news that he could come off some of the steroids! He is now on 24 mgs and that is a GREAT thing! So happy! All his bloodwork looked good and they are happy with what is happening with him! His skin looks so good and his eyes have improved so much too! We are decreasing the IV fluids and antibiotic but still having to do them at home. That means I can sleep a little longer in the mornings!!!! We were told not to come back until 4/22, can't believe that! So long for us! God is blessing us that is for sure! He is good! Hopefully nothing will come up that will ruin this! We love you and thank you for hanging in here with us! Bone marrow test soon! God Bless You! Hugs and kisses! Alyce

Good News and Bad News!

We have some more good news! We have another addition to the family, this time on my side! Patrick and Tanya Thrasher had a baby girl last night, her name is Jade! So 2 baby girls born this week new into the family! Congrats to Mommy and Daddy, parents for the first time! Terry had a really great day yesterday! Gil, Davis and Rick came out to the house for their annual board meeting and caught T up on whats been going on at SCS. He really enjoyed them coming! Then they dropped him off at the BMT unit just for bloodwork and I picked him up! We went and got some lunch and Kristina met us and brought him home. Then David and Jeff came over and did some recording with T. He had a full day and was tired but really enjoyed being active and with his friends! I had to go to the doctor with Kristina yesterday morning early! She's ok just needed to be checked out! But now the bad news, while I was there I got a phone call from Mark Ward. He is the father of Mark I have told you about that has been going through the same thing as T since Christmas. Yesterday he went to be with the Lord. Please pray for his family, they are heart broken! He was 25 years old. We have to be blessed by the Lord and knowing what can happen he is not through with T yet! He goes for his photopheresis Wednesday and Thursday and that is helping tremendously! I will update after we see the doctor next week! God Bless You and hugs to everyone! Alyce