Better News!

We went to the BMT unit today and he had his photopheresis(yesterday too with Butch) and they had to give him 4 hours of phosphorus while he did the photopheresis today. For some reason he is losing this particular element it takes to make your blood cells work correctly. They do not know exactly why either. So he will get this when we come in for the photo in 2 weeks. They will most likely remove the temporary port since I will not need it any more! That is the next good news! We will finish up the fluids next week and the antibiotics are done. The virus he had is gone! God is blessing him so much! His liver counts have improved too! His skin color and his eyes have improved, it is a REALLY big difference since he started the photopheresis. Whoever invented that machine is a billionaire! He is also starting another step down from the steriods. Will be SO glad when he is completely off them! He is SOOOOO weak and it makes me worry about him falling. He is doing all the excercises he can to keep himself from getting weaker, almost too much! If you know him, you know he is a stickler about things and staying on them to make them work! Watch out salesmen for SCS! He will be calling you soon! Congrats to Mike and his first baby being born! Don't think I have left out anything, so many things were discussed today! He will have another bone marrow test done in May to make sure there are NO leukemia cells in it. It will be 2 years on May 26th since his transplant! We made it! Thank you Dear Lord! God is good! We love you all and thank you for staying with us through all this! Its a long journey and nobody could prepare you for this! Please pray for T to have patience, he is wanting to "Get Back" fast and thats not going to happen! He needs more patience! Hugs and kisses! Alyce