Great News!

Lidia called me yesterday afternoon and gave me the GREAT news! He has no leukemia disease and he is 100% Karen!!!!! I would have posted yesterday evening but the power was off when I got here. He goes for photopheresis Tuesday and Wednesday and he will see a doctor on Tuesday but will have the long term follow up next week. They are looking at all the tests and are going to put together a new plan. Not sure what that will be but excited they want to do this! He was fishing, of course, when I got the call and Lidia tried to call him herself but could not get him, so I had the priviledge of telling him. First thing he said was "Praise God". He is the reason he is here and all your prayers have lifted him up. We picked Kristina and Garrett up last night from the airport. Just glad to have them back in the U.S.A.!!! They had a great time but they just didn't want it go so fast! We all came back here and they opened up all the presents they got at the wedding! They are so blessed! We just want to thank all of you who have stuck by our side through this and prayed us through. God has listened and is still listening. Terry is still here for a reason because we were told that the disease he had he is not supposed to be here. They said so many that had what he had have gone on to be with the Lord. So we know God has a plan for him too! We love you all and hugs and kisses to you too! God Bless!

Happy 3rd Birthday T!!!!!!!

I am so proud and blessed to say everything went well today! He has gained 15 lbs in a year, I know that's not much but its good for him! His lung test went SO much better and they told me if they suspected anything, the bone marrow test would have been done much sooner! So I am at peace with all of it and know God is watching over us every moment! We hopefully will hear something before the weekend and if not it will be Tuesday or Wednesday when he goes back for photopheresis. They have to gather all the information together and go over it with a fine tooth comb! Kristina and Garrett's wedding was BEAUTIFUL and they are in Jamaica, on the other side from the fighting, thank goodness!!!! I could hardly keep from tearing up but I fought it hard when I saw T walking her down the isle. It has been very emotional but so sweet and so happy for them. Although, when he leaves Saturday going back to North Carolina, I am NOT looking forward to that! But they are married! We will find out where he will go after he completes his training with the marines. T is sleeping off the meds they gave him and I will update after we hear the results from the tests. Gotta go help him get up to go to the potty! We love all of you for going through this for the last three and a half years with our family! God Bless You!

Great News!

We got great news today! Met with Dr. Vaughan and they are setting up his 3 years tests for May 26th, his third birthday from transplant! Kristina and Garrett will be in Jamaica but she is alright with it! They will thoroughly check him out and of course the dreaded bone marrow test but I know everything, and T does too, will be alright! God has gotten us this far! They will look at all his tests and evaluate him and make a plan for the future! They will measure his donor cells(Karen's cells) and his immune system, heart, lungs and draw about 15 tubes of blood to look at and study. Hopefully when we get the results the next week it will be great news! The doctor even mentioned him going back to work, even maybe part time! But he said we had to wait and see what the tests results are to be sure what to do and not to do! We left there feeling good about it all! Tomorrow we go and get Kristina's wedding dress! No pics of that will be on facebook you can bet on that! Only 17 days until the wedding, WOW!!!!!!!!!!! Just SO glad T. is here to walk her down the isle and be by my side through it all! Thank you to all of you who have stuck this out with us and been by our side through it all! God Bless All of You! Will update after the tests are done! Hugs and kisses to all!

3 Year Birthday Coming!

WOW! Can't believe its been a month since I updated this! SO SORRY! He is doing well, still fishing! In fact, he is fishing in his second tournament today. He had cataract surgery two weeks ago on his right eye and last Tuesday had the left eye done. This was caused by the heavy steroids he was on for the GVHD. They told us this would happen but it came earlier than we thought. So for the wedding, he will be able to see everything so much better! Wants to make sure he gives her away to the right guy, HA!HA! I am sure Garrett would think that was funny! Garrett will be home in two weeks and we are excited! I more than T of course! Giving his little girl away is killing him. BUT, we new this day would come and am just so glad he is here to be the one to walk her down the isle! Just 21 days from today! We see the doctor this week because he is going for his photopheresis on Wednesday and Thursday so one of those days we'll go through what's been going on in the last month and discuss when to set up the 3 year tests. This is the one where they will go into his bone marrow to see if anything looks different. And then alot more tests to see how his lungs and heart are holding up. Plus about 15 tubes of blood to check everything else in his blood system. But he tells me he is fine because he would know it if he was sick. God has really blessed us, we know this!!!! Since Kristina has been working at the BMT unit, we have found out how things could have turned out. Its so sad to hear about people that have gone through what we have gone through and don't make it. So kiss your loved ones and tell them you love them, because you never know!!!!! Say a little prayer for Butch too, he is having an arteriorgram(spell check doesn't recognize this word) on May 7th! Michael and Margie are now husband and wife so many additions added this year to the family! Hugs and kisses to all of you too! Alyce