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Thursday, May 7, 2009

Big Test Next Week

We went to the BMT unit today and Dr. Vaughan said he was very pleased on his liver counts and everything looked good. His platelets are a little low and not sure why but not low enough to get platelets by no means! His arms and hands are so damaged from the steroids, coumadin and now low platelets. He has really bad places on them. He went to photopheresis yesterday with Butch and today with me because we see the doctor on the second day. He will have his "BIG TEST" next Wednesday, all the tests for his 2 year birthday from the transplant. Two years and a half you have been with us through all of it! Can you believe it! We have made it through 2 years! That was our goal, but so much more to go! His feet are REALLY swollen and it makes it hard for him to walk. His feet hurt with all the fluid in them. We will come down again off the steroids and will continue each week to reduce them! YEAH!!!! He should be totally off them by June 11th. Pray everything goes well next week and the leukemia is still gone! God is good and is watching over us! There are so many people up there that are relapsing, that is VERY scary! We hear of someone every time we go up there. We are leaving it all in God's hands and trust he will take care of it! We love all of you! God Bless You All! Hugs and kisses! Alyce

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