First Time For Everything!

Well, we have been so lucky this far but there is a first time for everything! He does have the graft vs host disease in his eyes and I'm thinking it is in his sinus cavity too, so does Terry. He puts up a front but he did tell me this morning he was scared. We went to church and I put on our membership card to put him back on the prayer list. They worked before and they will work again! He is at Eddie's recording his song he wrote. I tried to talk him out of going but he said he wanted to get this song down and it might be his only chance. It is a tear jerker, he's only played it once for me and he said he had changed it around, so I am not sure how it goes now. We are putting cyclosporine drops in his eyes each morning and at night. He also has steroid drops he can use every 3 to 4 hours and then we put an ointment in them before we go to bed. They also increased his cyclosporine(immune suppression meds) by mouth to 50 mg per day instead of every other day. So we are going backwards instead of forward and he is depressed about it. I am going to talk to the doctor when we go Thursday(he is getting bloodwork done for the liver enzymes) about giving him the lowest dosage of depression meds until we can get back to the right direction. We talked about it before but they gave him the testostrone shot and he got better. So I do not know what they will do. Kristina came home(in her nursing uniform) this weekend, haven't seen her in two weeks, and that really helps him!!! Harlie(her dog) cheers him up too! She is starting her clinicals and seeing her in her uniform really makes us think WOW she is really doing this! We are SO proud she is who she is! I talked to Karen and Butch and Karen said she was going to give blood this week at a blood drive, but she might need to give Terry a booster so she decided against it. The doctor said if we were going to see this disease it would be on the taper of the cyclosporine, he was right! We see the neurologists Tuesday, for the numbness in feet, hands and arms and Thursday for more bloodwork. I will update you after these appointments! Please pray for his recovery, God is good! Hug you sweethearts this week, you never know what's around the corner! Love to all! Alyce