Liver Problems Again!

Do not know what is really causing the liver problems but they wanted me to look through the journal book we have kept since Terry was diagnosed and see how many blood transfusions he has had since the beginning in Carraway. The enzymes are back up a little and they are watching it closely. He had had 8 in UAB during the transplant. His blood pressure was low so they kept him all day to give fluids and then they took it after giving him a liter of fluids and it did not come up as much as they had hoped, but they made him promise he would drink alot of fluids and let us go about 3 pm. He is also very low on his vitamin D and gave us a presciption for him to take for the next 12 weeks. He asked if he could go fishing and get out in the sun, but we know what that answer was "NO NO NO!" The sun could cause more GVHD on his skin. He has also lost almost 7 pounds in two weeks. So due to the lack of appetite I will be making him milkshakes and drinking ensure again! I will have to measure the intake of food for three days before we go back and report how much food he is eating. Dr. Salzman seems to think maybe he has a slite case of GVHD in his esophagus and could be making it where it is hard to swallow his food. As you can tell there are alot of maybe's in his case. I think they see so many different people react to the different situations they are in and try to come up with answers and are really not sure, they just suggest what they think! Only God knows! I just can't help but think that God has a plan for us and it is SO much bigger than we ever know! We are in a different world now where people are so sick and some are not sure they will even make it through a transplant. We met a man that is 24 years old and has been battling CML(Chronic Leukemia) since he was 22. It has now turned into acute like Terry's. His sister is also a perfect match so we gave him encouragement today to have faith in God and do what the doctors said and excercise alot before the transplant. He seemed very strong! I hated to bring all this "wonderful" news to all of you, but all of you are our strength and we believe God is going to pull us through this! We love you! Alyce and Terry