GVHD Still Here!

The biopsy of the esophogus went well and they were able to stretch him out to a 17 which is the number they got to last time. But the doctor did tell us that he thought it looked like GVHD. And right as we were pulling up to the Kirkland clinic Wednesday morning, Lidia called to tell us it was confirmed that he has it in his mouth. Did NOT want to hear that. So Terry has decided that it is in lungs because the cough will not go away. I am sure they will biopsy them soon. They have given him a mouth wash to help but it will not heal it. He is using a gel in his mouth to heal it, at least that will go away as long as he uses it correctly. Dr. Johnson told him that the pain that he had swallowing was the GVHD not because of the small esophogus. He has the "magic mouthwash" that he is going to use before he eats, this will numb his esophogus so that it will ease the pain when he swallows. He said it has helped. He is just SO tired of having so much to do to survive through this. He did go to work today and will tomorrow and that has helped his feelings alot! He will go Sunday hopefully this time after church and they will draw blood to make sure his blood clotting meds are working. And then he will go in Tuesday and get blood drawn for his labs for Wednesday's visit. We will be discussing alot this time. They will most likely go up on his immune suppression meds, this is the only way to attack the GVHD that we know of right now. That is what we are going to discuss. Karen told him yesterday if he needed her again just let her know. Bless her heart, she is going through her own tests. Pray for both of them and next time you see T, ask him if he's drinking. He is not drinking enough to keep his body hydrated I am afraid. Brother Jerry called and they talked awhile and that gave him even more determination to fight this. We thank you for hanging in here with us! God Bless You! Hugs and kisses! Alyce