Happy Birthday John! 21!!!!

I am so sorry for not updating before now!!! This has most definitely been a roller coaster ride! He had a surgical procedure done Monday and they gave him a shot we think he had a bad reaction too. First time for that! Did not like it!!! He had to be taken in to the BMT yesterday(Kristina to the rescue again)and they ran tests and did not seem to know what caused him to feel so bad, other than the shot. He is feeling better, thank goodness! We were able to go and celebrate John's 21st birthday after all. It turned out to be a OK night except not getting much sleep the night before. Just glad we were not in the hospital for it. Can't believe our baby is 21! Somebody's getting old!!! T's feet are much better. Over night his feet went all the way down to he can actually wear a normal shoe instead of sandals. We went to church Sunday and he looked down at his feet and said I wish I could wear different shoes, well now he can. I can see veins in his feet, I have not been able to see them in months. He is now off the steroids and he is getting stronger everyday. They are adjusting his meds and coming down off of some of them since he is off the steroids. He went to photopheresis today and we will go back tomorrow and see the doctor. Dr. Vaughan saw him yesterday and asked him why he had to be such a mystery. That the things that are happening to him have not happened to any of his other patients. There is always a first time for learning, UAB being a research place, just hate T is the guenie pig. He is getting stronger, can get out of a chair without using his hands to push him up and out. That is BIG!!! Just had a BIG scare yesterday, just glad it wasn't too big! At one point they said he would be admitted, but didn't. Going up and down on the roller coaster!! Want to get off and back to a steady pace! My step-mom had surgery today so I am praying there is nothing to worry about there, she is OK and the doctor said good things about her. They all had a good time in Alaska last week and glad they are home! Just had to come back to this heat! I will update after we see the doctor tomorrow, I promise! We love you all and BIG hugs and kisses! Alyce