Home from The Hospital

We got home around 6pm this evening. We had oxygen delivered to our home for him to have at night while he is sleeping and when he needs it. Dr. Salzman told him that the medicine, Dapsone, was most likely the cause of him to have low blood pressure. Its in the blood disease family and is only treated two ways and giving oxygen is one of them. So he is off that medicine and on another. We are SOSOSOSO ready to be off these meds!!!!! He is feeling better and that is the important thing! He has photopheresis tomorrow early in the morning!!! He is going to ride in with Kristina and I will pick him up and bring him home. He is VERY happy to be at home. Karen was sweet and posted what was going on for me, thanks SIS!!!!! I was hoping he would get to come off the rest of the immune suppression medicine this week, but so much for hoping! PLEASE PRAY this goes away from his blood system or he will be going in and out to get fluids ALOT! His blood pressure is something that can't be played with or messed up! I am tired, can you tell???? Hugs and kisses to you all! God Bless You All! Alyce