Almost 3 years

We are counting down the days until his third "birthday"!!! He went to the hospital the last two days for his photopheresis and he saw the doctor yesterday. They increased his immune suppression medicine because they suspect he could have GVHD in his mouth and esophogus since he is still having problems swallowing food. He had it stretched not too long ago but it didn't seem to do much good so I think that is why they are suspecting GVHD. We really thought he might come off of it completely, but not the case! So please pray it is not GVHD!!! We've come so far and are planning Kristina's wedding for May 22nd and are just so grateful that he is here to walk her down the isle. I told Lidia yesterday I didn't want his bone marrow test done before that. I just don't think we want to have to deal with that until after the wedding!!! My mom is still dealing with high blood pressure and is wearing a heart monitor now. We have to get her straightened out! I know God only gives you what you can handle and he is really testing me!!!! Please pray for me to have some relief! Working and taking care of two people having health problems is enough! My brother is still in Vancouver working and will not return until the end of March, for the paralympics now. Kay, his wife, has been great! Sorry so long posting this and complaining as I read back at this. Just been a little busy and too tired when I get home! Thanks for listening and hugs to all! God Bless You!