Coming off Meds!

He had a GREAT visit today! He is going to start tapering off the immune suppression meds tonight and every two weeks come of a little more each time! This is going to give Karen's immune system a chance to take over! YEAH!!!!! He is also going to come off one of the meds tonight and every two weeks they will take away one more! YEAH!!!! He is getting stronger every day and he is starting to fill out more and more! He will continue the photopheresis once a month to help keep the GVHD from coming back! As long as GVHD stays away they will continue to come off more and more! We're down to 26 meds now! He can now drive according to the doctor, she gave him permission. Praise the Lord! He is looking after him! And our family! Hopefully this will all go well and by Christmas be totally off the meds! Thank you for hanging in here with us! Couldn't have done it without you and all your prayers! Please continue to pray for little Victoria, she is having a really bad time with infection and the doctors are not sure what is causing it! That is NOT a good thing! BIG hugs and kisses! Love to you all! Alyce