Saturday, August 29, 2009
GREAT 26th Anniversary Present!
Well, we got the present we were wanting! He got to come off 75 mg a day of immune suppression meds! Starting on Friday he is only taking 100mg in the AM and the same in the PM. That is a BIG step! I am having to stay on him about putting the drops in his eyes for the GVHD(the drops make his eyes sting REALLY bad) so he doesn't like doing it at all. But the stinging is hopefully the healing of his eyes. He got his glasses on Thursday, we had a really big day and a great day for our anniversary! It was nice just taking it easy with him and just being together and remembering what we did the day we got married. Sometimes people forget what it meant to them on that day. We enjoyed a very nice dinner at Flemings Steakhouse, a treat in itself! We go to the BMT for photopheresis on Sept 9 and 10 and will hopefully get to come off more meds if the doctor will let him. We will meet with the doctor on the 10th to discuss anything that may be happening(GVHD in the eyes) and then they will decide if he can continue to come down off any meds. We love you all!
We learned that Victoria(8 year old with AML)got to go home this past week. She is doing much better! Still don't know if she is in remission. All the prayers are helping!!!
My step-mom is fixing to go through radiation for the next 6 weeks. She had breast cancer and they removed the cancer but think she needs the radiation to keep it from coming back. Please pray for her speedy recovery!
Hug your loved ones, you never know what is around the corner!
Hugs and kisses!
Alyce
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